Tag: deaf
what to do, what to do…?
So, the contract for my Blackberry 8700g and my Tmobile account comes up for renewal at the end of September. For two years I’ve been pretty much happy with what I’ve gotten (sans a few aggravating moments here and there). I’m wondering if I should simply renew? Renew and replace my blackberry with another model? Or perchance I should jump ship?
My blackberry is worn, the trackwheel is functional but barely — and tends to stick when scrolling through web pages or my menu. Real pain in the ass to deal with if I am trying to browse the web or just navigate applications on the Blackberry desktop menu. Then you have the fact there is no camera built in like just about every other cell phone or handheld out there and it seems just a little to antiquated.
So if I upgraded the Blackberry and Kept T-Mobile, I’d likely switch from the 8700g to the Curve. The interface seems straightforward like the 8700 and what not. No big learning curve (no pun intended). There’s a built in camera and what not. Bells! Whistles! But not bleeding edge.
The other alternative is for me to let the contract expire and go with another carrier with another device. Of course, the IT device right now is the iPhone and only one carrier has it — American Telephone and Telegraph. Unlike T-mobile, AT&T doesn’t straight out offer people in circumstances like myself a data-only package. No, in most cases you have to buy a standard package with the iPhone even if your hearing does not leave you capable of utilizing the phone itself on the device.
AT&T does offer data only, deaf packages for the iPhone but you have to jump through hoops in order to get it. I don’t even want to try to figure out the swing-time it will take for someone in the offices to read over signed documents, proving my deafness, and then approve the data only plan. It’s certainly not user friendly (or enabling) to only offer the application to those seeking them for phone use alone. Some people — even the hearing — would like a convenient, mobile means of surfing the web, texting and utilizing mobile media… All while not paying out the rear end for a laptop that is too bulky to utilize for simple mobile applications.
So as it stands at the moment, T-Mobile looks like it’ll be getting my business again by default. Anyone else have suggestions?
Ten years gone; the life and times of a late-deaf adult
1997.
As I said in October, I had graduated from High School that year, forgotten in a huge senior class at East Lake High. There was one quality I had, though, that stuck out which people may remember me by — my hearing was shit.
After graduating in June of that year – with about 25 percent or less of my original hearing, I basically did nothing. I was reached out to by no one and didn’t attempt it much myself because I was the wall-flower… I couldn’t hold a conversation with thanks to not being able to understand what people were saying (even with the help of a hearing aid). And at age 18? Who’s going to put up with that?
I sank into depression and my health deteriorated. This hearing situation had already led to my decision not to attend Flagler College in St. Augustine (where I had been accepted the previous spring) and now I was isolated and alone in a world I couldn’t take part in. My balance became somewhat less dependable than tuning into MTV and seeing a music video playing. I wobbled and swayed all over the place and depended on leaning where and when I could, onto stable and solid things… Anything to keep me upright.
that’s little ole’ me, circa November 1997
It was sometime in October of that year that I had an MRI performed on my head, and in a matter of days had a doctor tell me flat out that I could go to bed one night and not wake up the next morning. A 7 centimeter tumor effecting blood flow and cramping the brain will do that to you. Acoustic Neuroma is the scientific term to describe this, but the truth is it was the end of one life and the beginning of another…
It’s been ten years – not by choice, not by design, but by inevitability – that I’ve been deaf. Ten years since the natural hearing world escaped me and I was plunged into a more difficult version of society where one attempts to fit in while feeling like an outcast. Sure, I use a variation of the cochlear implant now (and have been for six years) and am doing quite well with it but I still haven’t turned a corner to make conversation easy to understand and take part in with strangers. I miss that the most…
It also doesn’t begin to describe the immediate aftermath aftermath — being trapped between worlds: A deaf person in a hearing world, a hearing person in a deaf world where those around me refuse to adjust and demand my adjustment to them. Or being thrust into the paranoia filled bigotry of the deaf community where the hearing (or late deaf) were not welcome unless their commitment to the deaf life was total and utter.
Of course the flip side of this is that it got me involved on the Internet, which led to a job, which led to my web design talents, which led to a certain legal threat and a lot of pluses and minuses along the way.
10 years gone, and I’m still standing.
10 years gone, I’m still left wanting.
Deaf Hard — With a Vengence
My buddy David sent along this story about a deaf person’s Starbucks encounter and brought back “pleasant” memories of being treated in the same degrading way in the past.
Of course, this time, the hearing impaired person got the comeuppance. Cruel in a way but with how horrid you can make someone (afflicted, disabled, or just different) feel by treating them below you, that’s cruel in itself,
Bigotry against Hearing Impaired: Performance Computer Group of Tampa
What decade do we live in? The 1950’s or the 2000’s?
I’ve got a laptop computer I basically can’t use not because it’s not in working order but because it doesn’t have the capablity to do what I need it to do and thus it makes the machine expendable. I’ve been looking for a way to move the laptop without losing a ton of money on the deal.
I looked on the Tampa Tribune‘s website and through their classified ads in an effort to look through the Laptop market and see if anyone was trying to purchase laptop computers in Tampa. I found www.tampanotebooks.com which is operated by Performance Computer Group. They’ve got a shop on Dale Maybry and they say that they buy used laptops – working or not.
I figured to call them up and see how much I could get for my machine… A phone call isn’t such a painful thing after all. Even if it is Voice Carry Over through the Florida Telecommunications Relay Service.
So I called up Performance Computer Group of Tampa — three ring slater a man picks up and the text that comes across my TDD phone reads thus:
“Uh, we don’t do any Relay calls. OK, thank you.”
*Click*
Some people don’t get what a Relay call is… It’s when someone deaf is calling you through a carry over service. It is not an excuse for you to treat a caller like a complete piece of shit. I’ve dealt with that from Bright House Customer Service and Capital One customer service as well. Usually I call back and get a representative that isn’t such a moron.
But in this case? The company just lost my business and came off like he was against the Relay system to begin with. “Why bother? Just some deaf clown trying to hassel me.”
Rest in peace, Honey
🙁
Honey, my shitzu Yorkie terrier mix, had been on her last legs for a while now. Her teeth had basically rotted out and she was having problems eating, she weakened and she was having problems getitng up and down the stairs among other things.
She’d been deaf for a while…. But this afternoon (unbknownst to me) my father took her to the vet to be put down.
Her suffering has ended though… I hope she is at peace wherever she is….
Home Video Lameness and marketing idiocy
It was sort of an interesting thing to happen and cool that it happened to me but at the same time, it aggravated me… No, not just that, it infuriated me.
Last nigh, a representative from Warner Brothers Home Video emailed the webmaster of Boltsmag.com — namely moi — and tried to recruit me to help sling their product on the web. The product in question is the Stanley Cup Championship DVD which shows highlights of the Tampa Bay Lightning season along with Game 7 of the Stanley Cup Final and the Lightning being crowned as Champs. It’s a DVD I very much want to be able to enjoy….
But I can’t. No sir, I can’t invest a couple of bucks in the DVD knowing it’s going to a company that didn’t complete the DVD and put it on the market. I can’t invest in a company branch that does it all the time with their sport DVDs. The Warner Brothers Stanley Cup Championship DVD lacks Closed Captioning for the Hearing Impaired and I happen to be hearing impaired.
Lets roll back the clock to more than a year ago with the Tampa Bay Buccaneers winning the Super Bowl…. It was a cap on a dream season for the Bucs and I quickly went and bought the DVD that Warner Brothers Home Video produced that had the entire game — or a likeness of it — along with season highlights and a pre and post game show (so they claimed).
What I found out, cruelly, was when I tried to view the season highlight package (which is always an incredible job done by NFL Films) I got pictures and sound but no clue what the narrator was telling me. No clue what miked players were saying. I could see games and relive moments but not find out what people were blabbering about at any given moment…. Was this a joke? I went to the actual game and they had the network video feed but — what is this? Not only is the video feed replaced by the respective teams radio commentary men but — no closed captioning. I had no clue what was being said by Buccaneer radio man Gene Deckerhoff or the Oakland Raiders respective play-by-play radio man.
So I could see but I couldn’t really enjoy the DVD. I wrote off a scathing letter to Warner Brothers Home Videos and got offered a free DVD of my choice as if to say “Sucks to be you – have one of our movies we can’t move on us!”
This isn’t an isolated incident with DVDs and lack of closed captioning. While major motion pictures are captioned on all DVDs, DVDs tend to be loaded with extra features such as commentary tracks and featurettes. Neither of these are captioned so that the hearing impaired can enjoy these additional features they are paying for when they buy DVDs. To make matters worse, Universal Home Videos doesn’t even use Closed Captioning but instead relies on Subtitles (much like you would see on a foreign film) with their movies. It becomes difficult to follow the film if the text is set on a white background or over a bright object. You lose entire sentences or entire conversations because of the setting of a scene.
And it gets worse from there. Trimark Home Video has the rights to NBC’s Saturday Night Live on DVD — which is both syndicated on TV and broadcast on NBC with full closed captioning… Trimark couldn’t be bothered to add this captioning to their DVDs of Saturday Night Live. Just as Rhino Home Videos couldn’t be bothered to add captioning to their DVD palette which includes children’s TV series like Transformers, Jem, GI Joe… Not to mention their Monkees DVD’s…. Or their original offering of South Park DVDs. (I have no clue if Rhino is still responsible for publishing South Park DVDs at this time. This may have changed).
With the Baby Boom population aging and their bodies failing them to one degree or another, why is it that the Home Video industry gets away with this? Better yet, with 22-34 deaf and hard of hearing Americans out there, why does the movie industry think they can ignore this demographic when it comes to their home video sales? Even more pertinent, why doesn’t someone stick the Americans With Disabilities Act in their face and tell them to shape up or ship out?
It’s an ironic story that Warner Brothers tries to get someone to help sling their DVD — for free — on the web when that person can’t even enjoy the product. It’s even more ironic that no one in the deaf community or elsewhere in America makes a fuss out of this… It’s one of the great dupe jobs going on in the entertainment industry for the sake of the almighty buck.
The Rite of Spring
The biggest reason I am glad I am deaf is pointed out by Matt at Defective Yeti
Absolutely no love lost for the fact I can’t be awoken because of mother nature :biggrin
Six years of Silence
You know, I was going to brush off this anniversary as another one that was a major milestone but also something I could forget because my day-to-day is busy enough without having to nit-pick at the past.
But it’s an interesting anniversary none the less — one that goes from silent to booming in 4 years and applies only when I’m lazy now.
I went deaf 6 years ago to the day.
I had an acoustical neuroma (egad, did I spell that right or wrong for the umpteenth time?) removed out in Los Angeles at St. Vincent’s Medical Center by doctor Derald Brackman and company… I woke up – not sure when, can’t recall what I was told in the past – with the only sounds in my head a constant tenninus and my own voice when I spoke. Of course, I hadn’t been able to hear much before that, as I had been constantly losing hearing in both ears since 12 or 13, but six years ago — my world went totally silent.
I can’t remember all the details – I checked in the night before to the hospital. I didn’t shave my head, like I should have done, and that resulted in a gnarly haircut… I do recall me quipping about the Big One hitting during the operation (“what happens then?” I asked those who were prepping me) and I can recall the immediate aftermath of surgery – being chained to a bed and being asked to touch my nose with my restrained hands.
Of course there is more to it – my life now with sound and the Auditory Brainstem Implant has beaten deafness. There are anecdotes from when I went deaf and the immediate aftermath to regaining my hearing in 2001 with the ABI… And of course me aborting setting up the ABI in March 1998 and delaying having sound back to begin with… but alas, that is for another time because my computer is in need of help.
Reloaded Ramblings
Well, I’ve been feeling :puke since late last night. Honestly, I was up until 6 AM because my stomach was doing knots and I couldn’t have slumber sweep me away. It didn’t help that I had stayed in bed until noon the day before….:sleepy I gotta get back to normal hours.
At any rate, Mike gave me The Matrix Reloaded as requested as a late birthday present (speaking of late birthday’s – my silence towards other’s birthday’s is only because of other’s silence twoards mine). I had seen the movie back in June so it wasn’t like I was unaware what happened…
But come on, folks… you should know me. Well, maybe you don’t. I happen to be deaf and use a device to help me hear — but most conversations are tough on me. So I depend on captions with TV and the like.
What does this have to do with Re-Woah-ded? It’s time for my delayed review on the film now that i understand just WTF was going on (not to say I didn’t through watching the movie with just the images on screen).
I look at this movie and I watch it and after dropping all the rehetoric — “It’s about choice”, “Cause and effect”, “It’s understanding that choice and why you made it” and all the other stuff — I find the film’s aim to be about Faith. Undying faith.
How did I jump to this conclusion? Neo being ridiculed by the Architect for having hope. The fact that Morpheus is at a cross roads (“I have lived a dream and now that dream is gone from me.”), and how much the people of Zion and even the machines must believe in Neo — or believe in themselves for that matter — in order to survive the coming onslaught from the Machines.
There’s the love story that you see in this film which is faith in a bond between two people (sidenote – the scene with the cave and Neo making it with Trinity could have been edited out and re-shot with just the two of them in bed in the warm afterglow. That might have moved the movie along faster).
I don’t know, maybe I am missing something here — maybe I just enjoy the movie enough to not care to see the contradictions that the critics are talking about… I see this as a film of faith. As will Revolutions end up being.
Keanu Reeves has said the movies are about “Birth, Life and Death” which scares me a bit because I don’t want to see Neo get killed off to save everyone else. I want to see everyone else saved somehow with Neo leading the way…..
Oh well, so much as for that.
I got my writing assignment back from Herr Fisher and need to work on that sometime soon. I don’t know when I will however. Sorta discouraged and sort of just blah right now with writing — though this entry came off my mind/fingers pretty well. We’ll see what happens.
Abilities
Some people in the world will never have to experience the nuisance of a muscle pull or will barely notice it. Others will never have to go through the aches of a broken limb and the difficulties that transpire because of it. Some will never meet someone with Downs Syndrome in person or perchance will never see someone who is wheelchair bound – if you can believe that.
Some people will go through life never having limped around for weeks because of a sprained ankle. Some people will never know how demoralizing it is to go through the world in a wheelchair when certain places in the world do not consider you a person. Some people will never know how it feels to have muscles fail on you not from exertion but because of injury…
Some will go most of there lives without being in the hospital for more than a couple of hours to see a birth. While others won’t even comprehend or try to understand the limitations that people have and the difficulties these people have going through life.
Blind. Deaf. Amputee. Arthritis. Those are just some basic things that can limit someone…
The whole catch to this is trying to understand these people and the problems they face. Most of you — and I am assuming about the reader base — will never have to know some of these problems and I’m glad to know it. Others know it full well. Some can comprehend, some can’t. Some won’t even try and I pity them…. Others think they know it but demoralize in there attempts to help.
Here’s hoping you never have to go through some of the shit I am right now — struggling to do basic things, struggling to make my life feel normal (which it isn’t). Here’s hoping you can comprehend the difficulties that others face… And that you’ll know how to act (and not avoid, or look away) when faced with problems from others or even yourself.
Worlds Of Wonder
I’m writing this entry through Notepad right now because I’m not able to access my web site and update it — damn Digital Zones, fix the fucking thing already! (UPDATE — 8:41 PM as I write this and they are STILL down!
UPDATE 2 — 5:57 Tuesday — FINALLY back up and running )
I’m not feeling so great right now because my chest feels like it’s exploding… Every time I make progress with moving on, I regress a few hours later because of one thing or another. Hmphf, go figure.
I didn’t update things yesterday (insert shocked expression here) because I was waiting for something – anything – online and instead of that happening, I took some allergy medicine after I started feeling very ill and was stoned/out by 10 PM. Seeing I’ve been getting up extremely early and not getting to sleep until 3 lately, it probably was a good thing that I hit the sheets a bit early.
Yesterday I spent the early part of the day sunning myself at the neighborhood pool (that’s telling you how bad the condition of my own pool/porch are) and got righteously burnt with grotesque burn lines from my tank top to prove it. Something tells me that I am going to have to start remembering to use tanning oil :p .
On the way back from the pool I started wondering about some people that were part of my past and if I should bring them up here on the site — knowing that the Search Engines will end up crawling this page and their names will be indexed and they will be able to find this page (them or their relatives ) and realize someone who they may or may not remember was speaking about them and may or may not want to hear from me in the first place.
This is sort of a collective Where Are They Now but without the glory and gifts for those who take part in the program.
Let’s start with the one who lived closest to me who disappeared when 1) she graduated and 2) her mom left her step dad who still lives down the block from me: Lisa LaCasse. Lisa and me were in the same school from 5th grade onward and the last memory that shines through it all is me being a dick and giving her a “body glove” without thinking about her having whip-lash (senior year of HS). If it makes you feel any better, Lisa, I had a neck operation last year and I went through the same hell you experienced. It’s also worth bringing up that there were plenty of rumors (ok, not so much rumors as your sister and her friends screaming it at me when I rode down the block one time) that you had a crush on me at one point or another — it was probably for the best that nothing ever materialized with that because A) I was a coward at the time and B) I was insecure and both affected how I dealt with girls I met.
Next girl who I need to bring up is someone who I admittedly had an interest in during HS at one point but things got torn apart after we moved up from 11th grade — Jen Wertenberger (which I probably spelled wrong . I haven’t seen hide nor hair of Jen since — I can’t even remember. I did see her friends at Target one time and thought she might be with them but I didn’t see her if she was. Jen was a good friend and I was a smart ass and a dick when I was hanging out with her, and the same insecure coward I talked about above.
Now, the next name on the list is one that my friends hear one time or another usually when I confess my past and I am arguing with myself whether to mention her here or not… Ok, I’ll do it: Jill Clawser. There, I said it… Someone lock me up! I was so obsessed with Jill during 10th grade and much of HS but I was so scared to step forward and so insecure to tell her how I felt… Probably for the best, of course, everything happens for a reason or so I once was told by a very wise person. Jill dropped out from HS her senior year, I saw her a few times at Spencer’s Gifts and one time at Target on a passing chance but then – nothing. I had a web page up in my Pictures section asking “Where are they now” and her aunt came across the picture — ma’am, if you find this, I was sort of terrified someone actually responded to the inquiry about Jill and I didn’t know how to tell you that I can’t hear so well so I couldn’t use the phone and call her if you got her number.
There’s someone else I was close to online that has disappeared entirely because I know her life went in a different direction than mine and was always a good bit different than mine, she was someone I needed in my life as my friend in a very trying time in my life (right after I went deaf) and I value her being there for me till this day. Tiffany O’Neal of Jackson, Mississippi. Me and Tiff used to talk on AOL and later on AOL IM for hours every morning before she went to school… I got to know her and her friends that she lived with, Jill Brown and Thomas Hood. I’m wondering what-up with all of you? Last thing I heard from Jill was that Tiffany had entered the Navy? Maybe, maybe not… I can’t be certain. It was so long ago….
Memories…. from the corner of my mind….
Of course I could post about other people in here that I used to be interested in or friends with but it’s for the best that I don’t. Besides, this feels like I have been rambling for hours even though it might have been only 10 minutes. I’m much calmer than I was when I started this thing.
I’m really getting antsy though — I want access to my web site back so I can get this update up!
Oh yeah, kiddies, I’m getting Mike’s kick ass computer system as he is getting a new machine any day/hour/minute/second now…. I’ve cleaned out most of my files/pictures/movies/applications on this system so far and am ready to just format the hard drive and re-install XP before I venture off into my new machine….
* Time entry was written
Disturbed, Frustrated, Confuse-ed
Well, my day was mostly uneventful and I will get to that in a minute but I am having some trouble collecting my thoughts here…
*John rummages around his brain and tries his best to collect his thoughts*
OK, I think I found a writing concept for this journal entry that works — I should start at the beginning and go from there. The beginning is a good place to start, right?
I woke up this morning with a partial plan of action – I had to look into a job with a Dry Cleaner a few hundred feet from my house. I went there around lunchtime and I was basically told I needed to call someone to inquire about part time work with their company.
“Call” being the word that struck me out from that job.
So I am getting extremely frustrated right now with looking for a job – it seems like everything would either put me into a pointless job or would just brush me off because I am not a common member of society. I don’t hear great, I’m deaf, I’m not normal, I’m not right, I’m strange, move on soldier – move on.
I don’t even know if I should go into confused for sure…
Disturbed? Why am I disturbed? Well, lets just put it this way – the nation has turned blindly loyal to Herr Bush and his Bushshit regime, vowing that Dubya must be supported because “We are at war.”
Correction, my Fellow Americans, we are at “Police Action” seeing the United States Congress never issued a declaration of War on the sovereign nation of Iraq.
Iraq is supposed to have weapons of mass destruction and all these bad bad things and at the same time — the nation is being bombed to shit and they don’t use them to get the invaders? What’s the logic behind that? Maybe, just maybe, things were — GASP! — destroyed? Maybe, just maybe, this war is not — GASP! — justified? Maybe, just maybe, there’s a bigger threat in this world? Maybe, just maybe, there are problems in the US that won’t be solved with tax cuts? Maybe, just maybe, Dubya is evading them and riding this war straight to the polls?
I’m going to be sick now… :puke
Doing something shocking for another
Have you ever come across someone you can reach but can’t and yet want to do something to show them that you have interest, or are committed to them… Or maybe you’ve heard of someone who took an extra step on there own terms to reach the one they care about? Something that surprised or awed their spouse.
I was thinking back to a friend I had on ICQ a few years ago — a girl named Jayne — telling me about her boyfriend. Now, Jayne was deaf and had been that way for a long time… It would seem that not only did her boyfriend have interest in her but he went out of his way in order to make contact with her: He learned sign language specifically so he could just talk to her. I don’t mean he was already in with the girl – I mean he did it just to start talking.
And from what I recall, the two of them ended up married.
That’s just an example of doing something major for someone else. Of course, everyone is going to react differently to different things and that means there is no RIGHT answer to doing something like this… But is there anything that someone has done for you that has shown them going out of there way to do it? Or what would you do to go out of your way for someone else, just to show them you are keenly interested in them?
OK, this is one of those entries where I would like to hear the readers thoughts and comments on this… that’s what the little “COMMENT” link is for :tongue