Tag: charity fundraising

 

When Doubts and Dollar-signs Muffle Daydreams

I have the conflict between concept and cynic playing out in my head. It/s an empty daydream at the moment that inspires this contrast “♪ and probably will be for life♫”.

In recent months, I’ve thought to start a fundraising campaign tied to the rare genetic disease I suffer from, Neurofibromatosis Type 2, you can find reads about my plight with that here on Johnny Fonts. I tried to fundraise in 2016 at Raw Charge and had it fail with no network support from fellow hockey blogs or SB Nation. Or many readers for that matter. “Deke The Deuce” didn’, it died.

That was straight finance. My passing thought this time is purchase-of-music through a charity album.

A charity album of songs provided by independent musical artists the mainstream doesn’t know for a widely unknown disease? Oh, that has #FAIL all over it!!… or does it?

It’s just a thought. I have no clue on costs, artists who would agree to partcipate (tough I know performers I’d approach about this), or even the ideal medical institution researching NF2 specifically. I just know it’s a path creative and challenging. Especially for someone in the state I’m in.

I want to save others and fight the suffering, that’s grounds to seek charity… Can I achieve via rythem, harmony and goodwill? One can dream…

Consistant music in lyrics and genre, album art, costs, living with that black hole… The promo challenge to sell any music to make any mone… The list of challenges is intimidating, as is the doubts…

So is life with NF2.

I wrote these words 25+ years ago and they seem fitting here:

[…] And so, the damned strides on
Fear in his eye, courage in his heart […]

“Destitute”, circa Oct. 1996

It’s a daydream, and I may very well try it…

April 18, 2022 , , , , Personal, Indie Music, Medical, Music. & Lyrics Comments Off on When Doubts and Dollar-signs Muffle Daydreams

The joys (sarcasm) of charitable fundraising for a rare disease (NF2)

Wednesday, February 10th marked my 12th anniversary as a hockey blogger.  That’s a pretty huge milestone as bloggers don’t usually last more than 3 years… let alone 12! Oh, Stonegauge is probably older than that – though I did not have many entries the past few years. To mark the occasion I brought up the genetic/neurological disorder I’ve been dealing with since I started, and started a charity drive called Deke the Deuce. The money is going to a Tampa Bay area based Neurofibromatosis Type II charity organization.

Big time blogger raising awareness and pulling in dollars to aid the fight against NF2! Cute name for the drive too!

Yeah, well, what I’ve learned in the past week-plus of the drive is that charity fundraising is tough even if you have a huge reach through social and general media.  You may have a wide number of readers or thsoe exposed to the drive by way of retweets and Facebook shares but if someone doesn’t connect to the cause, why would they hand over a nickel, let alone the amount of cash that would actually show up on the charity page?

I don’t know the best way to “update” the page. Anything I say is too personal and too thin an audience sees it. Yet I have to connect and personal is the only way to do it.  But telling people how you went deaf? What life can be like in deafness or even just hard of hearing?

The fact I’m also mostly pushing this at hockey fans hurts things too just because I’m not sure how to give it a broader appeal.

I plan on running thins through March 16… I don’t know if I’ll even reach $500, but the money raised is better than nothing. And I HAVE enlightened some people and introduced them to the disorder in general.

 

February 20, 2016 , , , , interweb, JohnnyFonts.com, Medical, Personal, Raw Charge, Web Sites of Mine Comments Off on The joys (sarcasm) of charitable fundraising for a rare disease (NF2)